Nov
2
My Sister’s Latest Update
Filed Under Share Cancer Story | Leave a Comment
My sister was already completed her second chemotherapy session after her breast cancer reoccurred. I meet her at our parent’s house and I almost cried when looking at her condition. Her hair gone already (for second time), she look more skinny then the last time I meet her. Her swollen arms looks heavier and she has to hold her arms all the time. Her skin even darker and her eyes look black like she was being punched by someone. But when she look strong and smiling when looking at me, I hold back my tears. She ask me to take her photo and post it in this blog. Unfortunately, my mobile phone got problem and I did not have a camera with me.
During our stay at our parents house, she looks very happy meeting and talking to us. She has been telling stories about the treatments that she takes, both conventional and alternative. She also told us how the alternative practitioners informed her about the bad sides effect of conventional treatment. On the other hand, her doctors keep telling her about the scary cases of patients who believe in alternative treatment and did not takes chemo. That’s makes her confused and do not know which one to decide. As a results, she takes whatever medicines, treatments, herbs and supplements offered to her.
My other sister give her suggestion to choose only one types of treatment. But in her situation now, I pity her and try to understand who she felt. She is like drowning in the middle of the sea and will grasp anything that comes within her reach.
Anyway, as she already completed her treatment with the hospital, now I am offering her to stay at my house starting this December. I hope to support her by providing different surrounding and treatment option. Right now I am planning and preparing myself, my family and my house for her. I am doing the checklist and among the things in my list are:-
1) Menu for her meal to provide her with good nutrition
2) Register yoga class for her state of mind
3) MP3 Hypnosis for her unconscious mind treatment
4) Transfer Factor for her immune system
5) Funny Stories DVD Collection to make her happy and smiling (I get this idea from The Secret)
6) Books about Cancer - its quite difficult to find books on this subject in Malay
I am still adding the list. She will be staying with us for 3 months. If you think there are more that I can add in this list, just write your suggestion in comments.
Oct
25
Rare Cancer Blogger Share Stories
Filed Under Share Cancer Story | 3 Comments
Few days ago, I found a good and inspiring blog written by MobileMom. She is a designer who was diagnosed with “Pleural Effusion of Mesothelioma Malignant”. This Cancer is very rare in Malaysia and the cancer cells are located at the lining of the lungs.
I love the blog. How she share her feelings and experience in her battle for cancer. Her positive mindset to survive and continue her normal life really amaze me. Blogging is a good therapy especially to women who likes to share her stories with the world. Comments from readers very helpful in providing support that they need most. Positive words and encouragements help the cancer blogger’s to enjoy life.
MobileMom is one of the inspiring blog and I give her 5 stars for what she did in her blog. Unfortunately, she already stop blogging but reason that she the only one who know why. Wherever she is right now, I wished her life wonderful as it should be with her family.
If you wished to read her blog, Click here…http://mobilemom.blogs.com
Apr
25
Cancer
My secretary has had 3 major cancer surgeries, and as a result was sleepy and run down. After 48 hours of taking 4Life™ Transfer Factor™, she is energetic and able to function again.
Manley L.
Cancer
I’m a 49-year-old woman and my cancer started when I was 17 years of age. And today I can finally say thank you to God and 4Life for giving me back my life. In February of 1999, I was diagnosed with cancer once again and this time it was in my lungs. I had decided not to take chemotherapy. I had already had two bouts of it aggressively and I didn’t want it any more. And I opted not to take any of the cancer drugs. Then the cancer decided to attack my bones and spine. In September, the doctors told me that my days were very limited. I had heard about Transfer Factor, and in October I had started taking it. My normal days consisted of 18 hours in bed. Walking and eating were very difficult for me. I ran high fevers constantly, with vomiting maybe 8 to 10 times a day. I had started taking Transfer Factor and Transfer Factor Plus in October. Linda Holston and Dr. Rob worked together and they said to start out on 3 Transfer Factor and 2 Transfer Factor Plus, which I did. I began to see an immediate improvement, then when we received the press release from Dr. See, regarding the increase of the NK cells, I bumped up the dosage. I became ill again and Dr. Rob said to cut back down. I went back down and decided to increase daily, which I did. November the 18th, 1999, I went to the doctor and I received a phone call that evening telling me that every x-ray and every blood count test that they took was completely normal, and there were no signs of cancer. I asked him if he was sure that it was my test and he said yes, and that everything had been tested four times by three different doctors. Today I have my life, my family and my son is going to have a mother that he is going to be able to grow up with. I thank Transfer Factor and all the doctors for everything that they have done, and I advise anyone who has any type of disease to get on Transfer Factor and Transfer Factor Plus immediately. And for children, keep them on Transfer Factor just as an extra protection with so many diseases around
Mary L.
Cancer
Last summer I was diagnosed with [a serious chronic condition] at the age of 74. I started on transfer factors and was able to keep my energy levels up between chemotherapy sessions. I even have had fewer cold sores. A couple of months ago, the doctor told me I had made a complete recovery from my [condition]. The doctors think it’s a miracle but they believe the transfer factors may have had something to do with it. I am so thankful
Rose W
Cancer
My husband had been battling cancer for about 2 years now and his prognosis was not good. He’s had cancer for several years prior to being diagnosed, and wasn’t really expected to survive. He’s endured two rounds of chemo, and his cancer returned in 6 months. He had to go for more chemo that was even more grueling than his first treatment and it completely devastated his immune system. He was ill all the time and continued to experience symptoms of his illness, including bleeding from the portion of the tumor that was not able to be surgically removed, as well as overall body pain and fatigue. Within 24 hour of starting enhanced transfer factors he said he felt just a dramatic increase in his energy level and a diminished body pain. And within 72 hours of taking enhanced transfer factors his bleeding had stopped. The most exciting thing of all is that his tumor has started to shrink and he has been on transfer factors only since this past August and he is now in his 11 month of being cancer free. The only set back that we have had is when we ran out of enhanced transfer factors and his bleeding started up right away again. Within 24 hours of restarting the enhanced transfer factors, the bleeding stopped and we decided that we would never be without this miracle product again. We have put our children on it. I am pregnant and taking transfer factors. My daughter’s allergies have vanished and no one has had a cold or sniffle or anything since we started this. It really is a fabulous product and I encourage everyone to get on it and get your kids on it
Sharon S.
Cancer
Dr Vivian Matalon tells of a patient that had cancer which had metastasized to the breast, liver and brain. This woman came to her office on a stretcher and after taking TF fro several weeks she is now much improved and walking…
Cancer, bladder
My granddaughter, Mary Katherine is 11 years old and was diagnosed with bladder cancer in Oct 1991. She had chemotherapy for a year. One type she took weekly, the other two she took every 3 weeks daily for 4 days. Needless to say, this took a tremendous toll on her body and immune system. When we heard about TF about 5 months ago, she started taking it. When she came back to Duke University Medical Canter for her checkup in Dec 2001 her doctor and nurses were amazed at her energy and overall well being. She doesn’t have to go back except for a routine check up in a year – no more dreaded tests. By the way, several of us in our family are now taking TF and TF+ as a protective measure, and guess what no colds or flu! Mary and the rest of us plan to stay on a maintenance regimen forever
Nancy E Johnson.
Cancer, bone
My name is Shaylee and I am 19 years old. Last June I was diagnosed as having Ewings Sarcoma, a rare form of bone cancer. While on chemo, I met a woman who recommended TF+. I took 4TF+ twice daily and there was immediate improvement in my well being. But more importantly I was able to stop taking nausea tablets. I no longer take morphine for pain. From taking 25 tablets a day, which the oncologist prescribed I took a few TF+ and was free of pain and nausea. I now have a clearance of cancer all of which I attribute to the miracle of TF+
Shaylee, NZ
Cancer, brain
Dr Steve Siagel DVM reported on a man named Frank who had a brain tumor behind his nose ( a deadly kind of cancer). After 2nd cat scan the tumor had doubled in size. He started on TF+ and took his 3rd scan, it showed the tumor reduced in size. Four months alter his tumor is gone and year alter he is still in remission. He is now taking 4 TF+ daily.
Cancer, brain
Bianca gave this testimony about a friend of theirs who was diagnosed with an inoperable brain tumor. He was given a new chemo treatment that assisted in slowing down the growth of the tumor but it was still present. He started taking TF+ 4 times daily. Since taking the TF+ he has had only one bout of illness. Doctors have stopped the chemo as his cancer is stabilized and his tumor has decreased in size. He is now able to return to teaching full time
Bianca, UT
Cancer, breast
I am 26 years old. A while back I found a lump in my breast. It was hard and didn’t hurt. My mother had breast cancer along with two of her sisters. They did an ultra-sound test and a mammogram. I was scheduled to go in for biopsy. I started on transfer factors. When I when in for the biopsy I happened to check my chest again and there was no lump. The doctor came into the room and I told him that the lump seemed to be gone. He checked me over and then sent me back for another ultra-sound test and mammogram. No lump! I am not sure if it was the prayer, transfer factors or both but I am so relieved
Susie Blaszczak
Cancer, breast
I had breast cancer several years ago and it returned in the form of a tumor growing in my colon. I had surgery and had chemotherapy. In January I heard about TF+ and decided to try it. My two tumor marker tests were too high and I hoped to reduce the numbers. In January my tumor marker tests were done. The C125 test was 52 (normal is 0-35) and the C115 test was 113 (normal is 0-35). I started taking 8 TF+ a day in February and the results of the two tests in May 25, 2003 are the C125 is now at 35 and the C115 is now at 45. These tests measure the cancer cells in the blood. I am also taking Xeloda
L/California
Cancer, breast
My name is Helen and I am a breast cancer survivor. I had to pace myself with every task I undertook. I wash my hair every day and always had to pause to rest while blowing my hair dry and I have very short hair. I went on Transfer Factor Plus™. After 11 days, I no longer needed to rest drying my hair. On the 12th day I went to a wedding. I danced most of the evening and the only thing sore were my toes due the fact that I hadn’t worn high-heeled shoes for so long. Now when my partner and I take the dog out for a walk I really have to watch my pace because quite often I’ll hear; “Helen slow down the dog and I can’t keep up.” I feel great and have energy to burn and friends now say I have a certain ‘glow’ about me
Helen.
Cancer, breast
A patient of mine came to see me with breast cancer. It had been diagnosed 5 years ago. She had chosen not to do traditional therapy but to treat it herself. By the time she came to see me it was inoperable and the tumor was the size of a grapefruit. There was an ulcerated sore 4 inches in diameter and 2 inches deep. It was black inside and smelled horrible. I immediately opened 6 TF capsules and sprinkled them on the wound. I told her to get organic cabbage leaves, crushed them and used them as poultice. I also asked her to take 9 capsules of TF+ a day. After 6 weeks the wound was all healthy pink tissue. The patient is now having a skin graft to close the wound and tests show no cancer cells in the breast or lymph nodes
N Maxwell ND.NZ
Cancer, breast
July 1999 I was involved in a car accident and in the resulting bruising on the right side, I discovered a lump in my right breast. It turned out to be breast cancer. I chose to have the lump removed by surgery. I then visited Noel Maxwell about changing my lifestyle and rebuilding my body’s immune system. I have been on TF+ for a year and have now been cleared by the breast cancer clinic
Robyne, NZ
Cancer, leukemia
One of Dr. Markowitz’s young patients with leukemia is in full remission and is taking TF and TF+ daily. His blood count remains good and the he remains infection free since starting TF and TF+…
Cancer, liver
4th stage (liver), had his chemo in October, after 6 courses of chemo, decided to stop, started taking TF+ (3 capsules a day for a month and increased to 9). He has put on weight and went back to work
CY/Malaysia
Cancer, liver
Liver cancer patient in 1980, starting taking TF and could feel a change in her health. She has introduced TF+ to her cancer friends
CY/Malaysia
Cancer, liver
I started Chemotherapy Oct 2, 2001, once a week for duration of an estimated 4 months therapy. I finished early with what I sincerely believe to be the help of TF+. I took one 3 times daily for a week, then two 3 times daily until the 3rd month. The remission seemed to be going so well that I boosted the dose to five 3 times a day with green tea ( a known cancer fighter) and declared war on the tumor in my liver. The tumor is now completely gone with only lingering affects of chemotherapy. The condition of the liver from the first C-scan to the last showed a dramatic difference. The area of the liver affected the first time seemed to be completely repaired. I will continue to take TF as a preventive and maintain a dose of one 2 times daily
William J, NC
Cancer, lymphoma
I have an uncle who was hospitalized at Cornell Medical Center with lymphoma. He was sent home in Jan 2000 because they had nothing further to offer him. His white blood count was 150. The normal was between 4,000 and 10,000. The uncle’s son is an MD and did not want anything to do with TF for his father. However my uncle did start taking TF and within 2 weeks his WBC was at 4,000. The MD is now looking for natural approached for illness. The uncle continues to improve and takes 2TF daily and 1TF+ daily
RHEA.
Cancer, multiple myeloma
I have multiple myeloma and decided to try TF+. After 7 weeks on the product I had blood tests done. The results of blood work were very good. All the counts were up. I used to be on a runner and am now back to running 3 miles a day
Murray, MT
Cancer, ovarian
My mother experienced a very excruciating death from an aggressive form of ovarian cancer. I was only in my early teens and she was 32 years old. Her sister died of this cancer. We have a very strong genetic tendency toward cancer. I have feared this all of my life. In December of 2000 I had a tumor 10+inches in diameter removed and immediately went on chemotherapy. Since my mother was a vitamin freak and still died, I wasn’t that big on nutrition. My dad talked me into going on enhanced transfer factors. My oncologist was very impressed with how strong my immune system stayed throughout my chemotherapy. I know there is not way to scientifically prove it, but I really feel that my strengthened immune system made the difference between what happened to my mother and her sister, and myself. Now in February of 2001 I am alive and well.”
Angelia Howard
Cancer, pancreatic
I have a patient who has pancreatic cancer and about 4 months ago he was given 3 months to live. He had been taking TF+ for 8 weeks (8 a day). He went to the Dr’s to have his blood tested. After the tests the nurse came out and asked if he had had a transfusion because the nurse could not believe how good his blood looked. Does taking TF+ affect the immune system? I’d definitely say so
Mike.
Cancer, prostate
I was diagnosed with prostate cancer last fall, I started taking TF and TF+ last Dec and my last PSA reading was 0.8%. That was down from 360 in August. Clearly the oncologist was startled and pleased. I’m also on hormonal treatment. I think the two treatments potentiate each other. One of my inguinal lymph was removed last fall and proved to have been devastated by cancer. My recent cat scan indicated no problems with lymph nodes. Needless to say I will continue taking TF and TF+…
Cancer, prostate
Dr. Rick Bennett’s father in law was diagnosed with stage 3 prostate cancer. His PSA count was 2000. The cancer had spread to the bones. He is in his mid 60’s. He cut out red meat and sodas, had Lukprone injections and chemo and radiation but didn’t have any improvement. He had heard about TF+ and secretly taking TF and TF+ daily as a test. After 6 months his PSA dropped to 10. Then 6 months later his PSA was at one. With no sign of bone cancer
Dr Rick Bennett, HA
Cancer, prostate
In 1998 I found out that I had prostate cancer. I was told that my cancer was not operable and that I would need to take shots for the rest of my life. I chose not to do what the doctors recommended. I tried all kinds of alternative medicines over the next few years. Last year everything went downhill for me. I was paralyzed from the waist down. The doctors decided to perform surgery on my prostate to stop the hormonal feeding of the tumors on my spine and the lesions in my lungs. After surgery I was on medication for pain when a friend told me about TF+. After trying this supplement for several days I found I no longer needed the pain medication and stopped taking it. Today the tumors are gone from my spine and lungs are clear. I now take 4TF+ a day and took 9TF+ a day for several months
Max, NC
Cancer, skin
I had a small cancer on my left temple that is gone. I have been using TF Renewal in addition to regular TF. There is no doubt in my mind that the addition of TF Renewal is responsible for this
Jan, KA
Cancer, spots
I had a burn on my arm. I dropped a curling iron on the inside of my arm and after three days, it was so infected it had a huge red ring around it. I heard the Tuesday night conference call where somebody had applied transfer factors to a burn, so I thought I would try it. I put the transfer factors with some water and, the next day it had a little scab on it. I had two spots on my face that looked like they were pre-cancerous, they hurt to touch, one was red, one was sort of grayish brown. They’d been there about six months. Well, I put water on it, then I dotted the transfer factors on there. The next day, I didn’t pay attention; I just left it on there. I don’t know if it peeled off or what, but I looked in the mirror that afternoon and they weren’t there anymore. I couldn’t even figure out where they were. I don’t know what happened to them. I had a wart on the top of my hand. I put it on. In three days, the wart was gone. I couldn’t believe it. So it works really well topically
Pat T.
Cancer, throat
I have suffered from cancer in my throat. The last time I visited my radiologist he exclaimed “What have you been doing for your throat, it looks wonderful. I am so thankful for enhanced transfer factors. I believe it is a lifesaver
James McDonald
Cancer, thyroid
I am 37 years old, and two months ago I was diagnosed with papillary thyroid cancer. The pathologist said that he was 95% sure that I had papillary thyroid cancer. Well, I didn’t believe him. So he gave the results to two other pathologists on blind study who confirmed that indeed I did have cancer. I was already following a nutritional program, so on top of that I started taking one transfer factors three times a day and two enhanced transfer factors three times a day. I took those on top of my baseline nutritional program for two solid weeks before my operation. They removed the entire thyroid and they could not find any cancer whatsoever. By the way, I have the lab results saying that I had cancer, and the follow-up lab results stating that I don’t have cancer. I am really happy with the results
Carlos P.
Cancer, tumor
I took transfer factors and the tumor in my hand, which had been about the size of a dime, is down to the size of a pin head
Lori L.
Cancer, uterus
4th stage cancer (started from uterus spread to lungs & liver), had her chemo done in September, started taking TF+ in October, and increased dosage to 12 per day in December. Her cancer cell count has come down from 500 count to 20 during her January blood test. She is much healthier now
CY/Malaysia
Apr
14
The New Way of Communication
Filed Under Share Cancer Story | Leave a Comment
Friends,
Earlier posts in this blog is more on articles and update of activities of our Holistic Success Group. The presentation of the blog is too formal. I just learned that the most effective communication to invite all the cancer patients and caregivers is through leisure and casual communication. Lets start talking from heart - anyone is invited to write comments (especially to our previous customers). Share your experiences and we can comfort each other and maybe some patients or caregivers want to give opinions.
Recently, I tried to called my sisters at least once a week to know her progress. At least I can offer her words of encouragement. She is very strong women - she don’t like sympathy, so what I did is to talk more about her business. What she is her next plan and give suggestion on how she can move forward. That’s give her the spirit to stay and think about future. So friends, what is your best words of wisdoms for our loves family and friends? Just give your ideas here!
I also plan to change the layout and design of the blog and sites and now still looking for a good design. I am not the computer expert, just looking around the net to get the free and fresh template ideas. I hope my reader don’t mind. But if you did, just tell me>….
Jan
16
No Rights for a Child - Part 5
Filed Under Cancer, Chemotherapy, Share Cancer Story | Leave a Comment
-1985-
Oncologists admit that chemo is ineffective: A year later, after trying out all the various chemo drugs on children, a group of pediatric oncologists admit that the role of chemotherapy is “unclear, ” that “responses are generally transient,” and “virtually no cures are reported.” They also admit again that an “active” drug (a drug that may temporarily shrink a tumor) has no relationship to a cure.
-1987-
Oncologists admit that chemo is ineffective and increases the risk of infection: “The (survival) rate was not improved by the chemotherapy program. An increased risk of infection was associated with the chemotherapy.”
- Jenkin RD, Boesel C, Ertel I, Evans A, Hittle R, Ortega J, Sposto R, Wara W, Wilson C, Anderson J, et al. Brain-stem tumors in childhood: a prospective randomized trial of irradiation with and without adjuvant CCNU, VCR, and prednisone. A report of the Children’s Cancer Study Group. J Neurosurg 1987 Feb; 66(2): 227-33.
The fact that chemotherapy actually causes cancer should be of no surprise to the oncologists. The chemotherapy they gave Alexander and thousands of other children is listed as “Known Human Carcinogens” by the National Institute of Health, the National Cancer Institute and the FDA.
In fact, cyclophosphamide was listed as a “Known Human Carcinogen” by the First Annual Report on Carcinogens published by the U.S. Department of Health and Human Services in 1980. In addition, there are four other chemotherapy compounds on that list.
Furthermore, the World Health Organization’s International Agency for Research on Cancer lists ten chemotherapy agents including cyclophosphamide and all alkylating agents as “Materials known to be carcinogenic to humans.”
It is hard to believe that oncologists would be injecting known human carcinogens into children with cancer. But, that is exactly what they are doing. They should not feign surprise when the children begin developing secondary cancers.
This is what happened to Alexander. His first cancer was medulloblastoma. After three months of chemotherapy the cancer returned as 30 separate tumors. At that point the doctors called it “leptomeningeal sarcoma.”
-1991-
Chemo leads to destruction of hearing, infertility and secondary cancers.
- Complications of chemotherapy include,“permanent hearing impairment secondary to cisplatin, infertility and an increased risk of second primary neoplasms.”
- Allen JC: Complications of chemotherapy in patients with brain and spinal cord tumors. Pediatr Neurosurg 1991-92; 17(4): 218-24
-1993-
The chemo is not the problem, it’s the children who are at fault: It’s 1993 and the oncologists have a new strategy - blame the victim. The drugs are exactly the same. Now, the problem isn’t that the chemotherapy is worthless. The problem is the children. They just have a poor prognosis.
“Children younger than 5 years who have PNET have a poor prognosis.”
- Goldwein JW, Radcliffe J, Packer RJ, Sutton LN, Lange B, Rorke LB, D’Angio GJ. Results of a pilot study of low-dose craniospinal radiation therapy plus chemotherapy for children younger than 5 years with primitive neuroectodermal tumors. Cancer 1993 Apr 15; 71(8): 2647-52.
- Today, according to the oncologists, children on chemotherapy have their brain cancers return in an average of 5-7 months. With chemo, Alexander lived a little more than five months from when he was diagnosed and he had all his tumor removed.
- Incredibly, the children operated on 70 and 80 years ago already beat Alexander in terms of survival, but if these kids had had the benefit of a modern surgery they might have lived even longer. Who knows how long these children would have lived if they had been given a modern operation?
- This suggested that chemotherapy was shortening children’s lives, not lengthening them!
-1998-
But even after these admissions that “virtually no cures are reported” with chemo in 1985, that chemo is “controversial” in 1991, “unproven” in 1993, and provides “a poor rate of survival and high treatment associated morbidity (i.e. side effects)” in 1997, nothing changes.
Here we are in 1998. The children are still getting the same drugs. The children die of the disease or the chemo itself. The conclusion is that the treatment doesn’t work. How many dead children did it take to reach that conclusion? What’s worse is that even with that conclusion, the oncologists continue to use these drugs on children….
THE END
Jan
15
No Rights for a Child - Part 4
Filed Under Cancer, Chemotherapy, Share Cancer Story | 1 Comment
- What you are about to read will shock you. It is a story of oncologists lying to parents and the public about the efficacy of their therapy. The quotations that follow come from abstracts and articles printed in their peer reviewed medical journals that trace the use of these drugs in children starting almost a quarter of a century ago. It is organized in chronological order. Incredibly, all these drugs are still being administered to children in hospitals throughout the country, sometimes without the parents’ consent.
Alexander was put on protocol CCG 9921 that consists of:
- Vincristine
- Cyclophosphamide
- Cisplatin (very similar to Carboplatin)
- Etoposide (also called VP 16)
- 1976 -
Vincristine causes seizures: In 1976, the oncologists experiment on children with a drug called vincristine. Twenty-two years later, they would administer the same drug to Alexander. Here in 1976 they find that the drug causes seizures.
-1978-
Vincristine does not eliminate cancer: A year later, they tested vincristine with two other chemotherapy drugs on more children. The tumors returned in an average of 45 weeks with the chemo.
-1982-
Vincristine destroys eyesight: The fact that oncologists were already warned that vincristine was dangerous to a child’s eyesight didn’t seem to make an impression. It didn’t for Alexander’s oncologist in 1998. This article is written about another child who nearly goes blind from vincristine in 1982.
-1983-
Cisplatin destroys hearing and leads to neurologic deterioration: In 1983, the danger of another chemo drug, cisplatin, is discovered, but only after trying it out on children. This is another drug the oncologists would inject into Alexander fifteen years later.
- “Six children received cisplatin for recurrent brain tumor. Five of the six children had evidence of significant hearing loss after only one cycle of treatment. Two (children)…developed profound deterioration in neurologic status within 72 hours after infusion.” - Granowetter L, Rosenstock JG, Packer RJ: Enhanced cis-platinum neurotoxity in pediatric patients with brain tumors. J Neurooncol 1983; 1(4):293-7.
- Cyclophosphamide does not affect survival: That same year, another chemotherapy drug called cyclophosphamide is tried out on children. It does not effect survival. This is the third of four drugs they would administer to Alexander many years later. This article admits that even if a drug is “active” and temporarily shrinks a tumor, it does not prolong life.
- “A case of fatal myeloencephalopathy (inflammation of the spinal chord and brain) secondary to accidental intrathecal administration of vincristine is reported in a 16 year old boy. He underwent a progressive ascending chemical meningoencephalitis leading to coma, and died 36 days after the injection. At autopsy, all regions of the brain that had been in direct contact with the cerebrospinal fluid were necrotic (dead).”
“Gonadal function was studied in two groups of children previously treated for medulloblastoma…In group one, but not in group two, the children also received adjuvant chemotherapy (BCNU or CCNU plus vincristine in four and procarbazine in three patients). The nine children in group one showed clinical and biochemical evidence of gonadal damage… In group two, each child…(developed) normally…We conclude that nitrosoureas (chemotherapy) was responsible for the gonadal damage…”
- Ahmed SR, Shalet SM, Campbell RH, Deakin DP. Primary gonadal damage following treatment of brain tumors in childhood. J Pediatr 1983 Oct; 103(4): 562-5.
-1984-
Oncologists may not count dead children in their statistics: The next year, several chemo drugs including vincristine, and etoposide, are administered to children in another chemo experiment. Etoposide is the fourth and last drug in the chemo cocktail they would administer to Alexander fourteen years later.
TO BE CONTINUE
Jan
14
No Rights for a Child - Part 3
Filed Under Cancer, Chemotherapy, Share Cancer Story | 1 Comment
The following quotes are taken verbatim from Alexander’s medical chart. Each entry is written by Hyder.
September 25, 1998
Mr. and Mrs. Horwin and I discussed treatment options in the office for about two hours…We discussed the risks of chemotherapy at length including low hemoglobin, low white blood cells, low platelets, infection, need for blood transfusion, need for platelet transfusion, pain, nausea, vomiting, hair loss, skin injury, heart damage, lung damage, liver damage, kidney damage, loss of hearing, small stature, hormonal problems such as low growth hormone or low thyroid hormone, infertility, second cancer, intellectual decline, worsening of neurological symptoms, ineffectiveness, and death. Mr. and Mrs. Horwin were quite distressed by all the potential side effects, but I explained that despite all these risks, I believe the potential benefits of chemotherapy in prolonging the length of cancer free survival or possibly cure are greater than the potential risks.
October 2, 1998
…without chemotherapy I am quite certain that the disease will relapse and this could possibly result in Alexander’s death. PLANS: We will proceed with chemotherapy like CCG-9921A, as the best available therapy.
October 3, 1998
I received your voice mail message that you have decided not to bring Alexander for scheduled chemotherapy today…Alexander needs chemotherapy now…We need to get chemotherapy started if Alexander is to survive this disease.
October 6, 1998
“About 4:30 p.m. on October 5, 1998, Mr. Horwin telephoned and asked me about a variety of biological therapies such as “nerve cell growth factor,” “retinoic acid,” and “tumor necrosis factor”…Mr. Horwin asked to use these biological therapies for his son before chemotherapy. I again told him clearly in my professional opinion, chemotherapy is the next treatment to use because of its known clinical efficacy.
He was distressed by the limitations of chemotherapy, since treatment is successful in only about 30-40% of children with Alexander’s type of cancer…I explained that the best opportunity we have to successfully treat Alexander’s cancer is to use chemotherapy now…I reiterated that my best professional advice which is to use chemotherapy now against Alexander’s cancer. I spoke to Mrs. Horwin and explained what I had explained to her husband. I told her that my best medical advice is to use chemotherapy for treatment of Alexander’s cancer. I told her that without chemotherapy, Alexander may die from cancer…”
- We began to research “leptomeningeal sarcoma” the cancer that had grown so rapidly and killed him. One of the abstracts that came back stunned us.
- It was a study published in 1994 by Dr. Heideman, the oncologist we had met at St. Judes Children’s Research Hospital. It discussed the “leptomeningeal progression” of medulloblastoma in thirteen children Alexander’s age who were given chemotherapy. It explained how the cancers returned and spread in eleven of the thirteen children within five months.
- It mentioned that for some of the children the cancers grew in the spines. Incredibly, this abstract described in detail exactly what happened to our son. But even more astounding, the abstract explained that this protocol was terminated due to the poor performance of the drugs.
- The chemo that they had given these children was identical to the chemo Hyder had administered to Alexander. The four drugs were exactly the same - vincristine, cisplatin, cyclophosphamide and etoposide. The cancer that returned, metastasized and took Alexander’s life did so in less than five months from the time when he had his surgeries
TO BE CONTINUE
Jan
13
No Rights for a Child - Part 2
Filed Under Cancer, Chemotherapy, Share Cancer Story | 1 Comment
- The oncologists warned us that if we didn’t use chemotherapy that the tumor would probably return in three months. These doctors assured us that the chemo they were administering to our son was the current “state-of-the-art.” They told us repeatedly that this was Alexander’s best choice for a long and healthy life.
- We continued the chemotherapy. As a result of the drugs, Alexander’s balance was lost, his ability to see deteriorated, and he lost hearing in one ear. The whole thing was horrendous.
- After a “clean” MRI on January 4th, Alexander had a spinal tap. A day later Alexander complained of pain in his head and back and he began to vomit. We asked for another MRI but Hyder, the oncolgist, refused because he had done one just a few days previously. Hyder told us that Alexander’s pain was just a side effect of the spinal tap. But as each day passed the pain became worse.
- We brought Alexander into the hospital on January 11th and Hyder ordered a CAT scan without contrast. We were told that the scan looked “fine,” although later, we would find out that a CAT scan especially one taken without contrast is not designed to reveal the presence of a returning brain tumor.
- Finally, on January 18th, we brought Alexander into the hospital and demanded a MRI. Hyder refused to order the test. He explained that it was too late in the day to schedule one. We had a confrontation. We would not leave until a MRI was ordered. Finally, Hyder relented. Alexander was wheeled into the MRI suite.
- An hour later we had the news, Hyder shook his head and told us that Alexander had over 30 tumors throughout his brain and spine. “What does that mean?” we asked completely stunned. Hyder just continued to shake his head.
“What is it?” we asked him. “Leptomeningeal sarcoma. I am so sorry. There is nothing we can do.” “How is this possible?” “It happens,” he said. “How often,” we asked. “It happens sometimes. I’m so sorry.” How long does Alexander have,” we asked. The surgeon paused. “A few days, perhaps,” he said.
“The only thing we can do is send you home with hospice care. I’ll give you a prescription for morphine and decadron,” Hyder said as he awkwardly patted me on the shoulder. “I think it is better to keep your son here tonight and you can go home tomorrow,” he added.
Alexander died on January 31st, 1999 in his mommy’s arms. Our son was only 2 ½ years old. After Alexander was buried, Raphaele and I wanted to know what happened. No one ever told us that the cancer could come back and kill Alexander while he was on chemotherapy. In fact, Alexander was only one quarter through a twelve-month chemo protocol (comprised of induction and maintenance chemotherapy).
TO BE CONTINUED
Jan
12
No Rights for a Child
Filed Under Cancer, Chemotherapy, Share Cancer Story | 1 Comment
(a true story by parents Raphaele & Michael Horwin)
Over forty years ago, those powerful words were written and endorsed by many nations throughout the world including the United States. It is a beautiful declaration but sadly it is only an illusion. The medical establishment took every single one of those rights away from our only child Alexander. Without the right to live, there are no opportunities for affection, play, or love.
Alexander was two years old when he was diagnosed with medulloblastoma, the most common pediatric brain tumor. This cancer is rising in frequency.
After the first round of chemo, Alexander began to change. Even after two brain operations, Alexander was still a vibrant, ruddy, strong, energetic child. But as the chemotherapy repeatedly filled his small body Alexander began to die inside.
- First the relentless stomach pains and the horrendous projectile vomiting began. Then his beautiful curly hair fell out. Next his dark skin tone turned pale as a ghost. He got sick with fevers and spent weeks in the hospital.
- Then there were the blood transfusions to replace the blood cells the chemo had killed, the hearing tests to see if the chemo drug cisplatin had not devastated too much of his hearing, the nuclear medicine tests to check if his kidneys were not giving up under the strain of processing so much poison, the liver function tests to ensure that his liver was not being destroyed, etc.
- During chemotherapy we had to squeeze an antibiotic into his nose called nystatin several times a day. He hated it and buried his face in a pillow when he saw it coming with all the strength his little body could muster. One of us had to pin Alexander down and keep his head immobile while the other pushed the syringe into each nostril and injected the solution. We were also called upon to give him GCSF injections at home.
- Then we found the following statement written by Hyder in our son’s medical chart. It was dated September 26, 1998:
“Dr. Heideman also called me because he was very concerned about Mr. and Mrs. Horwin…He was very concerned that the family would refuse treatment and that a court order would have to be obtained to treat Alexander.”
- And on October 6, 1998 Hyder continued:
“I think that if Mr. and Mrs. Horwin do not bring Alexander in for chemotherapy tomorrow, additional steps will be necessary.”
- We went to see an attorney to find out if the oncologists could take Alexander from us if we decided to stop chemo. Incredibly, the answer was yes !.
(TO BE CONTINUED)
Jan
9
Paget’s Disease of the Breast
Filed Under Cancer, Latest News, Share Cancer Story | Leave a Comment
Today, I get this email from my schoolmate. Usually I never forward any email that looks suspicious or contains wrong or inaccurate information. So I did little research on the net and found about this disease from this website. This is the link.
The statements that we should worry is here!
The cause of Paget’s disease is unknown, but certain women seem to be at a higher risk of developing breast cancer. This includes women who have never had children, or had them late in life, women who started their periods at a young age or who had a late menopause, and women who have a strong family history of breast cancer.
Read the email here! I did not amend any sentences. But if you want to get the accurate information, I suggest you search from google at the top of this website.
New kind of Breast Cancer - DO NOT DELETE
Please forward to all of the women in your lives . Mothers, daughters, sisters, aunts, friends, etc.
In November, a rare kind of breast cancer was found. A lady developed a rash on her breast, similar to that of young mothers who are nursing.
Because her mammogram had been clear, the doctor treated her with antibiotics for infections. After 2 rounds, it continued to get worse, so her doctor sent her for another mammogram. This time it showed a mass.
A biopsy found a fast growing malignancy. Chemo was started in order to shrink the growth; then a mastectomy was performed; then a full round of Chemo; then radiation. After about 9 months of intense treatment, she was given a clean bill of health.
She had one year of living each day to its fullest. Then the cancer returned to the liver area. She took 4 treatments and decided that she wanted quality of life, not the after effects of Chemo. She had 5 great months and she planned each detail of the final days. After a few days of needing morphine, she died. She left this message to be delivered to women everywhere:
Women, PLEASE be alert to anything that is not normal, and be persistent in getting help as soon as possible.
Paget’s Disease: This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and aureole It appeared as a rash, which later became a lesion with a crusty outer edge. I would not have ever suspecte d it to be breast cancer but it was. My nipple never seemed any different to me, but the rash bothered me, so I went to the doctor for that. Sometimes, it itched and was sore, but other than that it didn’t bother me. It was just ugly and a nuisance, and could not be cleared up with all the creams prescribed by my doctor and dermatologist for the dermatitis on my eyes just prior to this outbreak. They seemed a little concerned but did not warn me it could be cancerous.
Now, I suspect not many women out there know a lesion or rash on the nipple or aureole can be breastcancer. (Mine started out as a single red pimple on the aureole. One of the bi! ggest pr oblems with Paget’s disease of the nipple is that the symptoms appear to be harmless. It is frequently thought to be a skin inflammation or infection, leading to unfortunate delays in detection and care.)
What are the symptoms?

1. A persistent redness, oozing, and crusting of your nipple causing it to itch and burn (As I stated, mine did not itch or burn much, and had no oozing I was aware of, but it did have a crust along the outer edge on one side.)
2. A sore on your nipple that will not heal. (Mine was on the aureole area with a whitish thick looking area in center of nipple).
3. Usually only one nipple is effected. How is it diagnosed? Your doctor will do a physical exam and should suggest having a mammogram of both breasts, done immediately. Even though the redness, oozing and crusting closely resemble dermatitis (inflammation of the skin), your doctor should suspect cancer if the sore is only on one breast. Your doctor should order a biopsy of your sore to confirm what is going on.
This message should be taken seriously and passed on to as many of your relatives and friends as possible; it could save someone’s life.
My breast cancer has spread and metastasized to my bones after receiving mega doses of chemotherapy, 28 treatments of radiation and taking Tamaxofin. If this had been diagnosed as breast cancer in the beginning, perhaps it would not have spread…
TO ALL READERS:
This is sad as women are not aware of Paget’s disease. If, by passing this around on the e-mail, we can make others aware of it and its potential danger, we are helping women everywhere.
Please, if you can, take a moment to forward this message to as many people as possible, especially to your family and friends. It only takes a moment, yet the results could save a life.
Oct
5
Terry Fox’s Marathon of Hope
Filed Under Inspiration, Share Cancer Story | Leave a Comment
Heard of Terry Fox, Canadian marathon runner? Well, at 18 Terry was
diagnosed with cancer and had to have his right leg amputated.
Most people would see this as a tragedy and never, in their
wildest dreams, would they see themselves running. Not Terry Fox.
This courageous man decided that he would use this experience to
raise money for cancer research and make a difference to all cancer
sufferers. So, despite having only one leg, Terry started to run
across Canada to raise a million dollars.
Sadly, half way through his journey, Terry contracted another
cancer, this time in his lungs. He was forced to stop his run and
died on June 28, 1981. However, because of the inspiration that his
courage had created, he raised over US$24 million for his cause.
Today, over $330 million has been raised around the world through
the Terry Fox Marathon of Hope.
In all of our lives, there will always come a time when things seem
unfair, that no matter how hard we work for something, we did not
get what we believed we deserved. It may even be a terrible tragedy.
Many people allow events such as these to destroy their
self-esteem, their faith and belief about themselves and the
essential goodness of others.
They allow these events to cripple them forever in taking action.
But there are always others who use what appeared to be negative
events/happenings to grow stronger, wiser and more powerful.
Jul
12
In Memory of My Father
Filed Under Share Cancer Story | Leave a Comment
I would like to share cancer experience of our father when he was diagnosed with BLADDER CANCER.What I want to say to everybody, early detection save lives.
Since 2006, my father always complaints on blood in his urine. He also urinate more frequently but a sense of incomplete after each session. Sometimes the urge for urinate force him to wear diapers. When several time he met doctor and was being given antibiotic. The doctor simply said its was due to infection. After several checkup by doctors at different hospital, some said its was bacteria infection and other said its was kidney stones.
When he came for a visit at our place in end of June 2006, my brother sent him to the Subang Jaya Medical Center. After CT Scan, he was warded on 3th July 06 and being diagnosed with Bladder Cancer stage 4. Its was too painful for us to accept the facts about his condition and we did not have courage to tell him and our mother. (Our mother was just wakeup from coma and recovered from Myelodysplastic Syndrome (MDS) During that time, I was eight (8) months pregnant with my first baby.
After being warded for a week, my father request to be transfer to specialized hospital at our hometown. Reason : more relatives can come to visit him and the medical cost also less costly.
So after a discussion with all our siblings, we decide start from that day, we will fulfill and do whatever he request from us.
He was transfered to Hospital Kubang Kerian at Kelantan and registered for radiotherapy treatment. This is when we could not explain to him on, so we ask the doctor to tell him the bad news without us around. The doctors advice us to avoid surgery. The reason : he already >60 years old and at that age, the risks of surgery is higher. Moreover, even the surgery successful the recovery will be very slow and the results after surgery might disturb his psychology. This will cause this body will suffer together with his emotional. For better understanding on the bladder surgery, i did lots of research.
My father was given schedule for radiotherapy or radiation therapy which he need to attend every 5 days per week (working days) and the treatment will be completed after 12 sessions.
For get to the hospital, the traveling takes about 1 hour drive and before start he need to wait for 1/2 days to queue. Each day after the treatment, he looks and feel more weak, no energy, loss appetite and cannot sleep. After each meal, he will vomited and due to frustration, he did not want to eat at all.
After 6 session of treatment- in September 06 (the session was cancel several time due to various problem, machine problems, holidays and etc), he request to stay in ward to continue the therapy. He is so weak and so thin. It was so sad to remember the look at his face during that time. I was at my parents home waiting for my delivery date and on 5th Sept 06 I was giving birth to my first baby, NABIL ASIF.
the story became long although the period from he was diagnosed with Bladder Cancer in July 06 until he left us on Oct 06 was only 4 months.
After he was sent home by doctor, he did not want to continue for the treatment anymore. At that time, the therapy was stopped for 2 weeks because the machine was under repair. So, we sent him for further checkup at Kota Bharu Medical Center (KBMC) the private hospital. The results was given to us a week after that. During that period, my father request for oxygen supply. So we bought oxygen tank and the mask and tubing to ensure he felt comfortable even at home. The oxygen tank was so high and how we wish we get the potable one which less dangerous especially when our kids visited him and play beside his bed.
Since his last visit to the hospital, he never slept either at night/day. When my baby wake up and cry at night, I will take a look at his room. Sometime he called my name when my baby wakeup at night, crying. He even called and try to persuade my baby to stop crying.
He look very weak compare to the week before. He only stay in bed. I have his photo two days before he passed away, but I could not look at it anymore.
Five days after received the results from KBMC, doctor advice us to be prepared for the worst. And only two days after that, I still remember that night.
3 Oct 06
6.00 pm - My father asks about my brother from Kuala Lumpur. He though he was coming home today.
8.00 pm - My brother came home from Bentong with his family. He never slept at our house before but my father want him to stay and slept in his room.
9.00 pm - I called my brother told him that the oxygen supply just enough until tomorrow morning and estimated finished by 6.00 am. My father said he could not breath without oxygen supply. We was so worried and wished the oxygen enough until we get the supply tomorrow morning. We already ask the supplier that afternoon, but they also got no supply.
10.00 pm - My father ask my youngest brother to slept beside him.
4th Oct 06
2.00 am - He wakeup my youngest brother and my mother saying that he not feeling well. Later, my brother, my sister and I also wakeup. All of us stay beside him and try to calm him. Usually every night my baby cried but this morning he stay quietly on my lap.
4.00 am - My mother ask me to call all my siblings.
5.00 am - My father left us in calm.
Jul
12
Warrior is the most appropriate word to call all the breast cancer survivors out there. I more than impress with their strong will, courage and determination to fight against cancer. Its their inner strength is the most powerful weapon to kill cancer cells that attacked their body system. Those who weak and surrender to faith will be loosing the battle and just waiting for their time to come. I realize and learn about the power of inner strength from my sister, Aziyan@Azalina who was diagnosed with breast cancer in year 2004. Read more about her story by downloading this free ebook:
FREE EBOOK : Secret Letter To Cancer Warrior



